It’s been a rough couple of days at home for Deeds. He was even grumpy at the neurologist appointment at the children’s hospital today. He usually loves it there and wants to ride the elevator over and over but today he didn’t even want to ride once.
The the doctors are still trying to find the best seizure medication balance and since the past few weeks he’s been having what appears to be complex partial seizures along with a Tonic-clonic Seizure. His dosage has been increased again and we will see if we can find the right balance this time around. Our doctor said it may take some time to find the right balance since she started him on a very low dose. I’d rather have it be a low dose and work up than over dose him with medications that might slow him down.
We decided to decorate for Christmas last night to calm him down when he was having a rough night. He LOVES Christmas lights and so we got out our little tree and let the kids decorate it. The trip to get Magpie cost more than expected and add on the work Jeremy and I missed we believe we will be sticking a big red bow on Magpie to celebrate Christmas morning (and maybe next Christmas too…ha ha). Thank goodness the kids are young because I went through their toys and pulled some out they haven’t touched for a while and we’re going to wrap them up for them to open. I thought it was a great idea someone gave me! I am actually thinking of trying to find some other families that want to do the same thing so our kids will all have new-to-them toys on Christmas morning.
Here is a link for the little commercial that is airing for Deeds and Magpie’s story that will be on TV tomorrow night.
November 16th, 2011 at 5:35 PM
We’ve had those kind of Christmases too. (I’ve even done that for back to school stuff when they were younger. Pull out the looks like new stuff and hide it until it’s time to use it. Most of the time, they’d forgotten it by then.) Sorry that things have been rough in some areas. You’re an amazing family!