Deeds does not sugar coat things. As a matter of fact he will often quite literally tell you how he feels, when he feels it. Example:
Yesterday Deeds had a hard day. I decided to take him to run some errands while daddy watched little sister. I thought he would like a change of scenery since it was such a meltdowntastic day.
At the grocery store we only grabbed two things. While waiting at the checkout line Deeds proclaimed unabashed “That man needs to just go home.” Referring to the guy in line in front of us.
“He got too much stuff! He is just taking too long.”
On the way out of the store he saw a woman pushing a very full cart to the car and asked me “Did she buy everything in that store?”
Never a dull moment with Deeds!
The contract and information for the service dog came in the mail today! It took Jeremy and I two hours to read through everything. It might have been quicker if I didn’t keep stopping to cry because I was so emotional and excited for what this journey means for Deeds.
We have signed it already and dropped it back in the mail which means it is time for us to raise the money for 4 Paws for Ability. The dogs cost $22,000 to train and we are making a commitment to raise $13,000 for 4 Paws to aid in their programs and mission to place service dogs with people who have disabilities. We have set up a page at FirstGiving for JD to start raising funds and we will be planning other fundraisers so stay tuned. Many of you have asked how to help and I’m sure I’ll be taking you all up on the offers now that we are at this stage of the process.
We love you all, and are excited to share this adventure with you. Thank you so much for your love and support!
Sorry for the lapse in blogs recently. After the week we had with all the testing and everything mommy and the kids all got pretty nasty colds/bronchitis. We’ve been laying low for a few days and hoping it clears up before Thanksgiving festivities.
The Video EEG results came back yesterday and JD did not have any seizures while he was being monitored! We have opted to just watch him till his next neurology appointment for seizures rather than start him on anti-seizure medication now.
Today we had our phone interview with 4 Paws for Ability, and they are sending the contract in the mail for us to sign and return! He got approved and we couldn’t be happier. Once we get the contract taken care of we will start the process of fund-raising for the dog. They cost $22,000 to train and we will be committing to raising $13,000 of that for 4 Paws. We know it’ll be quite a process but we couldn’t be more thrilled about what doors this could open for Deeds. If JD continues to have seizures we will also be able to get the service dog trained for assistance with them as well. We are feeling very blessed!!
Yesterday afternoon it was snowing. Not a lot mind you, just little flurries. Apparently it was enough to get JD all worked up on a short drive with him. He has never had a problem with snow before but for 25 minutes in the car he melted down about it. He begged me to “fix it” or “stop it”. I don’t know if watching it fall while we were driving was too much stimulation for him but he was NOT happy about it. Hopefully it was a one time occurrence.
This week has been a tough one for Deeds and his meltdowns. He seems to have a lot more moments of absent-mindedness of late. I’m hoping it’s just a little rough patch he’s hit. Honestly mommy has had a cold so it may just be my patience is a lot thinner since I’m sick. Lets sure hope so.
The place we applied for JD’s service dog has cashed his application fee check so hopefully that means we will be hearing from them soon. Cross your fingers, toes and nose hairs. All prayers are appreciated.
For those of you that don’t know JD very well I need to explain how much he LOVES shapes. Many of his first words were shapes, and not just your typical heart, square and triangle. He loves to know the name of any shape. Once at a restaurant he kept saying octagon over and over again. We couldn’t figure out where he saw a octogon until we finally looked up at the ceiling and noticed the shape of the room was an octagon. We worked with him quite a bit so that he would start to say the name of an object instead of just the shape. He gets quite fixated on them. This brings us to the Tortilla Chip Fiasco of 2010.
JD can be quite a picky eater but he never refuses chips. He will ask for them often, especially “orange chips” which are Dorito’s. Today at his Structure play group at KOTM Deeds was quite upset about the chips they had for snack time. Normally we buy tortilla chips that are triangular in shape, but the ones they gave him with salsa were rectangular in shape. My first mistake was to empty the little bag of chips into his bowl. He yelled and screamed at me and then one by one put them all back into the bag, crumbs and all. Then when I figured out that he wouldn’t try them because of the shape the two therapists and I all tried to break them into triangles. Deeds would not be fooled, and continued to yell at us. Finally another little guy in his class wanted more chips so I said he could have JD’s and that sure got Deeds attention. He upturned the bag and put all the chips back into his bowl and told me in no uncertain terms that they were his chips.
Finally after 15-20 minutes of trying to get him to try the chips it was time to clean up. While picking up the chips I found one that was a square and offered it to him and the little stinker gobbled it up. After he ate the square one I guess he decided the rectangle ones weren’t so bad and made everyone wait while he finished his chips.
I can’t really blame him, it’s kind of been a melt down kind of day. They come around, where mommy and daddy can’t do anything to help calm him down. Most of the time when you try things it just makes it worse. We have a couple of tricks like letting him swing, throwing him in the air (which he is getting too big for ) and having him hang on his gym rings we mounted downstairs.
It’s been a week and we are still waiting on word about his approval for the service dog. I’m not holding my breath we will hear within the month but I really hope so since it’s causing mommy anxiety.
Last Wednesday we sent in the application for Deeds to get an Autism Service Dog. I know even if he is approved we have a long road ahead of us with the fund-raising and training, but the waiting to find out if he will be approved for a dog is what is the killer for me. We talked about it for so long and so the fact that we made the decision doesn’t matter until we hear back about the dog is agonizing.
JD loved Halloween. We practiced trick-or-treating for about a week before the big night. It took Daddy 45 minutes to coax Deeds into the costume for the first time. It was a comedy of errors but he finally tried it on and then for the next 4 days we had struggles getting him to take it off. When it came time to go door to door it was raining. We tried to tell him that we were just going to stay home but that WAS NOT an option for him. He was determined so I grabbed two umbrella’s and JD and I went out while Dad stayed home with little sister. 2 hours later JD was still going strong and quite upset when I made him go home. His favorite parts of the evening were seeing two kids dressed as Brobee and Foofa from Yo Gabba Gabba, and ringing people’s door bells. It didn’t matter if the door was already open he rang every single door bell at least once. Don’t be under the delusion that we covered a lot of ground during that 2 hours.