Tag Archives: mild cp

William Tell

Last year we really wanted to make it to the special needs night at the Capital Theater but we couldn’t because it was right after Deeds burn.  This time we were ready to go and counted down the days!

We met daddy up in Salt Lake, all of us dressed up.  Even Magpie got a good brushing before we headed out.  When we arrived we were early so we had our pick of seats but with Magpie and us being unsure how Deeds would react to the music we sat in the back.  Ended up being a good choice since anytime there was clapping Deeds would complain about the sound.

To be honest it wasn’t exactly Deeds cup of tea.  I think he enjoyed the music as background noise but within minutes we had the iPad out to keep him calm.  Little sister on the other hand was in HEAVEN.  Who would think a 2 year old would love the symphony and opera so much.  She loved conducting the music and all the singing.  Magpie was fantastic and even got recognized from TV by a couple of employees that asked how she was doing.  We spoke to a few other families about her and she got a lot of love from the kids that were there.  By the time we got back out to the car she was worn out and thrilled to just lay down and relax.  She and Deeds both snored all the way home.

The best part of the evening was one of the last numbers.  I’ve heard the William Tell overture many times.  I think I’ve even preformed it before in some band.  In case you need a refresher here it is:

A little while into the song in the center of the Theater a young man stood up and started conducting the song, waving his arms haphazardly through the air.  His enthusiasm was contagious and soon the room was filled with flapping hands and dancing with yells of joy following.  All these amazing spirits that had done so well during the performances were able to really act out how the music was touching them.  As I looked around at them all I couldn’t help but let the tears just slide down my face.  Even Deeds was laughing at this point.  The conductor turned around at one point smiling and it was such a wonderful moment.  No dirty looks or scolding from those behind the revelers, just smiling and happiness.  It was truly heaven on earth.

The evening ended in pure joy.

A HUGE thank you to the Utah Symphony and Utah Opera.  We will be back next year!


Happy Birthday Deeds!

Deeds in the NICU

Four years ago our little man made his entrance into this world.  He was 5 weeks early but had to be delivered because of my heart.  I remember getting to see him for just a moment before they whisked him away and then not seeing him for hours until they finally let me go into the NICU.  All it took was that first touch to be completly smitten with him.  He is so endearing and has been touching peoples lives since them.  With all his challenges he is an exceptional little boy and he is an inspiration to me and his daddy.

We love you little man and know the years to come will be amazing for you.  Don’t let autism, epilepsy, PVL or the mild CP slow you down, you can do anything you set your mind to.  I know you will always find a way, even if it isn’t the way others think it has to be done.   We love seeing all the new and creative things your mind comes up with.

We had the birthday party on Saturday and it was an amazing hit.  Makes me feel better about spending the time to make the cake and stuff.  To say Deeds loved all the angry birds stuff would be a gross under exaggeration.  Thanks so much to those who came.  He had a rough morning with meltdowns but once we were at the party he did fantastic!!  Enjoy all the pictures.

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